Competent adults can give informed consent for a procedure
when they have been given appropriate information by
professionals and have had the chance to think about it. With
regard to genetic tests, the information given needs to include
the reason for the test (diagnostic or predictive), its accuracy
and the implications of the result. It may be difficult to ensure
that consent is truly informed when the patient is a child, or
other vulnerable person, such as an individual with cognitive
impairment. This is of most concern if the proposed genetic
test is being carried out for the benefit of other members of the
family who wish to have a genetic disorder confirmed in order
to have their own risk assessed.
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